Wednesday 22 March 2017

Thankyou from a grenade

I would give anything to walk away from all this.
The ability to walk away from the hell that Mast Cell Activation puts me though on a daily basis.

However I don't have this option.

It baffles me how amazing my friends are. These individuals have the opportunity to walk away from all this and never look back- yet they stay by my side. They hold my hand when I flight for my life, they cry with me when things are bleak and they laugh along with me on my crazy adventures.


I'm not a huge fan of books and films that failing health a beautiful drama, however there is a beautiful quote from 'The Fault in Our Stars' which I find very relatable.

'I'm a grenade and at some point I'm going to blow up and I would like to minimize the casualties.'
I love my friends and I want to protect them as best I can. I force myself not to isolate myself from them to prevent damage, but to allow them the choice and the option to walk away if they wish. I experience some frightening reactions, but I cant begin to imagine what they go through as a witness. I'm not sure I could watch a friend dying right before me and hold back the tears, yet somehow my friends do. They are my strength when I am weak and I know will be by my side until the very end.

When the end does come I hope they are comforted by knowing how much they meant to me, and I hope that they continue to speak my name with the ease that they do now. Until then I'm busy making amazing memories with amazing people.

Ticking off bucket list wishes, singing at the top of our voices in the car and laughing until I react and have to push rescue medication.

As much as I want to protect them, I owe many amazing friends my life. I've been lucky through the opportunities I've had in life to befriend many paramedics, nurses and other HCP's. Unfortunately due to the nature of MCAS it's meant them helping me when I can no longer help myself. Most recently to the amazing Sarah, for holding my hand with warmth when the world felt cold and blurry. For helping the medics understand how best to help me and for not treating me like a grenade. Also to Angela, for being my guardian angel and breathing for me when I couldn't breathe for myself.

And for everyone one who follows my story, loves my gymnastics or is a friend of mine. Thankyou for believing in me when I couldn't believe in myself.

This Sunday is the 2017 British Gymnastics Championships and at the time of writing this, I'm highly unsure I will be able to compete. However if I do, I'll be performing in honour of you all!






Monday 20 March 2017

I prayed to die...

I guess the title of this post is a bit of a give away as to the end result, but stick with me here, I promise you it will be worth it.

Many kind people tell me that they pray things will get better, or they pray for a positive outcome of test results. It's taken me a long time to ask that people pray not for a specific result but that I'm blessed with the strength to survive through these tests in life.

When my health began to fail me and it's fair to say my faith was tested. I used to feel very angry at god for putting me through such pain but then I realised that I was angry at god because I cared about our relationship. It was this realisation that makes me seek a deeper understanding of my faith. Every song we sang in church, every sermon that was preached felt like god had written it exactly for me at that moment.

It was this understanding that lead to my baptism. I chose a song with the lyrics 'strength will rise as we wait upon the Lord' as my song because I felt that those words had got me though so much, and would carry me through whatever lay ahead.

I hadn't imagined what lay ahead to be quite so difficult. I would say my faith was again tested many times with hospital admissions and scary procedures but I was flooded with this gratitude for life.

Yes I was crying in pain, but god gave me eyes of which to weep from.

Back in December I suffered another life threatening mast cell crisis. However this particular attack was the worst I've experienced to date.

I remember it so well and I really wish I didn’t.
I remember the world coming back to me in a haze, the sounds around me were still muffled but I could feel everything that was happening to me. I could feel the mask pressed firmly over my face. I could feel the air forced into my lungs with every press of the bag beside me. I fought against it, I was breathing for myself again and I was trying to breathe against the rhythmical breaths the doctors had been doing to resuscitate me. I could feel the needles being placed in my arteries and veins and I tried to cry out in pain but my body remained motionless.

At that moment, there was so much pain, so much suffering, I couldn’t go on.

I lay flat on the hospital stretcher and prayed to God for him to take my life. I desperately pleaded to him that I would lose consciousness and just slip away.

Lord please take me, immerse me in your mercy

The doctors realized and removed the pressure off my face, gently holding the mask above my face allowing the high flow oxygen to pass into my lungs. I was breathing. My heart was jumping in my chest I was sure at any second it would just stop. The blood that flowed through every inch of my body seemed to boil under the skin and I can honestly say that I have never felt to unwell in my life.

The nurse spoke to me gently and reassuringly. Tears were steaming down my face at this point and I was shaking as I held the comforting hand of a paramedic friend, Gav. I could hear the doctor in the background talking to another member of staff “she is incredibly poorly, get the intensive care team down here now”.

The strangest thing of all was that I didn’t want that team to come and save me. I had fought this condition long enough and I wanted my battle to be over.

No more.

I spent several frightening days in the intensive care until and months recovering physically from what had happened.

Yet everyday I pushed my faith further and further away from me.
How could I worship a God who ignored such a plea?
How could I trust in a God that allowed me to suffer so intensely?


I could not understand why I had grown up worshiping this God who, when I needed him most in my life, ignored me.

It's an ongoing process but I'm getting there. I'm finding my faith again, day by day and breath by breath. I realise that God provided medical professionals to help relieve my physical suffering, and that he will only let me experience what I can handle. However with god by my side, I can handle anything.

God recently bought a wonderful friend into my life who I'm so blessed to have. We are the same age, we have the same diagnosis and doctors but most importantly we are both children of God. Together we are both finding our relationship with god again and leaning on each other's faith when we need to.

I prayed to die, and god gave me a friend. Just as Proverbs 3:5-6 says 'Trust in the LORD with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.'

Whatever I wanted on that day, clearly wasn't part of Gods plan and some days I'm grateful that I didn't die, others not so much. Everyday I'm learning to adapt to new limitations but I know that I'm not alone.